Family Support
You are not alone. There are countless thousands of children with PANDAS and PANS, many of whom remain undiagnosed. If you suspect PANDAS or PANS, we can provide you with a list of treatment providers and with contact information for support groups meeting across the country and in foreign countries, too. The Providers link above will take you to the current list of doctors and other care providers. The current list of support groups is posted below. If you think you might be interested in facilitating a support group, please contact our group coordinator Kathy Abou-Rjaily at ksar@rcn.com. She will give you everything you need to get started.
ALWAYS CHECK IN WITH THE FACILITATOR BEFORE ATTENDING A MEETING SINCE SCHEDULES MAY CHANGE DUE TO WEATHER AND OTHER UNANTICIPATED EMERGENCIES.
Ms. Maloney is guided by a medical advisory team consisting of psychiatrist Daniel Geller, MD of Massachusetts General Hospital, researcher Tanya Murphy, MD of the University of South Florida, developmental pediatrician Catherine Nicolaides, MD of Developmental Pediatrics, Marlton, NJ, and surgeon Kevin Price, MD of Maine General Medical Center.
UNITED STATES
Arizona
Kate Fleck - facilitator
Phoenix, AZ
kateazpandas@gmail.com
Arkansas
Kim Hadley - facilitator
The Perk
3980 Wedington Dr. Ste 19
Fayetteville, AR 72704
RSVP: (479)466-9130 or krhadley@gmail.com
Group meets the fourth Thursday of each month at 7pm
California
Heather Ewalt - facilitator
Orange County, CA
Contact Heather at hgratza@yahoo.com
Jacqueline Van Nes & Cathy Cendroski - facilitators
2nd floor conference room
1900 Garden Rd
Monterey, CA
RSVP: jacqueline@vannes.us or
call 831-277-8161
Group meets the first Monday of each month at 6:30 pm
Colorado
Gretchen Rode - facilitator
Pueblo, CO
Contact Gretchen at gkrode@aol.com
Connecticut
Joanne Fournier - facilitator
7 Cantor Knoll
Ellington, CT
RSVP: (w) (860)528-9397 or joannefournier@comcast.net
Group meets the fourth Wednesday of each month at 7pm
Florida
Shelley Carmine Bowles - facilitator
Contact Shelley at (407)325-5719 or
scbowles@earthlink.net
Illinois
Debbie Padgett – facilitator
Contact Debbie at tnarbyort@comcast.net
Indiana
Tennille Fondren – facilitator
Contact: Suptennille@aol.com
Iowa
Missy Gaido Allen – facilitator
The Java House
713 Mormon Trek
Iowa City, IA
RSVP: (319)338-6871 or
missygaidoallen@gmail.com
Group meets the fourth Thursday of each month at 7pm
Kentucky
Sarah Jane Alleman
Lexington, KY
859-396-8718
PANDASLex@gmail.com
Louisiana
Michelle Reinhardt – facilitator
RSVP: michellesreinhardt@gmail.com
Group meets the fourth Tuesday of each month 7 pm
Massachusetts - Hanover
Lisa Grisolia – facilitator
Sky Spa
439 Columbia Rd
Hanover, MA 02339
RSVP: skyspahanover@yahoo.com or
Phone: 781-858-5667
Group meets the third Monday of each month 7 pm
Massachusetts - Salem
Kara McLaughlin – facilitator
8 Front St. #305
Salem, MA
RSVP: karamclaughlin@comcast.net or
Phone: 978-821-1233
Mississippi
Brad Robinson – facilitator
Contact Brad at pandaschild@yahoo.com or
pandaschild@facebook
Missouri - St. Louis
Kelly Wooldridge – facilitator
pt4kiddos@yahoo.com
First Meeting: Wednesday, February 15, 2012
New Jersey - Edison
Audray – facilitator
JFK Neuroscience Institute (NSI)
Conference Room
65 James St.
Edison, NJ 08817
RSVP: pandashelp@hotmail.com
Group meets the second Monday of the month 7:15 - 8:15 pm
New Jersey - Livingston
Heidi Schnapp - facilitator
Livingston, NJ
RSVP: Pandas.livingston@gmail.com
New Jersey - Parsippany
Maria Messana – facilitator
Parsippany Library – Group Study Rm 1
440 Halsey Rd
Parsippany, NJ 07054
RSVP: parsippanypandas@gmail.com
Group meets the first Monday of each month at 7pm
New York – Port Jefferson
Andrea Lyons – facilitator
Port Jefferson, NY
RSVP: itsall4them@optonline.net
Group meets the fourth Saturday of each month 7 pm
New York – Hyde Park
Nicole DeLorenzo – facilitator
Hyde Park Free Library
2 Main St.
Hyde Park, NY 12538
RSVP: delo3@optonline.net
Group meets the fourth Tuesday or Thursday of each month 7 pm
New York – Kings Park
Angela Blanchett – facilitator
18 Balboa Drive
Kings Park, NY 11754
RSVP: angelablanchet@gmail.com or
Phone: 631-745-3552
Group meets the fourth Friday of each month 7:00 pm
New York - Tarrytown
Rebecca – facilitator
El Dorado Diner
460 South Broadway
Tarrytown, NY
RSVP: pandas.westchester@gmail.com
North Carolina
Dana Cannady – facilitator
Starbucks
3800 Lake Boone Trail
Raleigh, NC 27607
RSVP: sunshine.cannady@gmail.com or
Phone: 919-337-7632
Group meets the first Wednesday of each month 7:00 pm
Ohio
Michele Snyder – facilitator
689 Howe Ave.
Cuyahoga Falls, OH
RSVP: michele_223@hotmail.com or
Phone: 330-305-0503
Group meets the fourth Friday of each month 6:30 pm
Oregon
Julie Stowell – facilitator
Eugene, OR
Contact Julie at edsjas@mac.com
Rochelle Scholl – facilitator
McMinnville Community Center
700 Evan Street
McMinnville, OR 97128
Contact: mmymonkers@hotmail.com
Group meets the second and last Wednesday of the month 7:00 pm
Pennsylvania - Philadelphia
Judy Kelly – facilitator
Contact Judy at jkelly1031@verizon.net
Pennsylvania - Pittsburgh
Julie McCune – facilitator
Pittsburgh, PA
Contact: kmccune196@comcast.net
Tennessee
Melanie Puckett - facilitator
Contact Melanie at mmpuckett@hotmail.com
Texas - Frisco
Deborah Quade Conner – facilitator
Water’s Edge
5475 Coit Road
Frisco, TX 75034
RSVP: Debbie – deborah_conner@yahoo.com
Group meets the fourth Monday of each month at 7pm
Texas - Euless
Roxann Hartline Krautkramer – facilitator
Starbucks
3920 State Hwy 121
Euless, TX 76039
RSVP: Roxann – rkrautkramer@tx.rr.com or
(817) 657-3856
Group meets the fourth Monday of each month at 6:30pm
Texas - Woodlands
Kerry Lubecki– facilitator
Montgomery County South Regional Library
2101 Lake Robbins Dr.
The Woodlands, TX 77380
RSVP: kerrylubecki@gmail.com
Group meets the fourth Thursday of each month at 6 pm
Virginia
Sarah Johnston – facilitator
Location: Contact Sarah for details
sarah_johnst@yahoo.com
Group meets the fourth Saturday of each month at 5 pm
Virginia - Chesapeake
Beth Crowe – facilitator
Kaufman and Canoles PC
524 Johnstown Rd.
Chesapeake, VA 23322
RSVP: notelizabeth37@yahoo.com
Group meets the fourth Saturday of each month 11:00 am
Washington - Seattle
Brett Henry – facilitator
Madison Park Starbucks
400 East Madison Avenue
Seattle, WA 098112
RSVP: 206-322-7642 or (cell) 206-898-2466
Group meets the third Thursday of each month at 7pm
INTERNATIONAL
UK
Suzanne Ayres - facilitator
Oxford, England
Contact Suzanne: suzanne.ayres@yahoo.co.uk
Mexico
Elva Gutiérrez – facilitator
Metepec, Edo. de. Mex.
Contact Elva: elgasa@prodigy.net.mx
Sweden
Gunilla Gerland - facilitator
Contact Gunilla: gunilla@pandasinfo.se
The above photograph was taken summer 2011 with a parent group in Seattle. Ms. Maloney stands in the center front of the photo. Sammy is in the green t-shirt. His brother Josh stands behind him.